Diseasemaps

About Diseasemaps

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HGactivists
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About Diseasemaps

Our mission:

Help people with chronic and rare diseases and other syndromes and conditions and spread awareness about them.

We connect people with chronic and rare diseases and other syndromes and conditions using maps. We want to spread awareness about these conditions and show people who suffer them that they are not alone. There are thousands of people living a similar situation willing to help others to find a way to get better.

https://www.diseasemaps.org/

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HGactivists
http://www.AydenRaeFoundation.org
Health Support and Awareness Advocate with a lifelong dream of being an educator, Vanessa was well along the path towards realizing her goal, having completed an Associate of Arts in Natural Science, Associate of Science in Social Science, Bachelor of Arts in Liberal Studies, and her Master’s of Education, Adult Educators and Administrators. Close to the culmination of the education required to reach her goal of a teaching career geared towards K-12, Vanessa had to make a difficult decision. She asked herself, “Do I continue on with my dream of being a teacher or focus on saving mothers and babies by helping to discover a cause and cure for Hyperemesis Gravidarum?” Vanessa was a volunteering for the Hyperemesis Education and Research Foundation [HER] when she realized there were limited options available when fundraising as a volunteer. The Packs decided to create their own foundation, one that would support all organizations seeking to discover a cause and cure for HG. The Packs held the first ever HG walk on October 20, 2007, A Walk to Remember: HG Walk America, raising awareness in the community and gaining much-needed support for those suffering from the disorder. Proceeds of the walk were donated to the HER Foundation. During the completion of Vanessa’s Masters in 2012, the Ayden Rae Foundation was born. After the birth and survival of the Ayden Rae Foundation, Vanessa and her family grew to understand that there was a greater need for more awareness and support for all diseases/conditions/disorders/syndromes and together they plan to spread awareness about every disease/condition/disorder/syndrome they are made aware of and help diseasemaps.org connect those who suffer from those diseases; discover that they are not alone and find the resources available for them. It is vital that we all do our part to help eradicate all disease, so families are no longer suffering. It is noteworthy to point out that the worst disease on the planet that most in the world overlook is aging and death! Remember to always be willing to learn more about things you aren't aware of and show compassion for those who are afflicted; awareness and support is key for all of us ❤

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