Facebook Instead of Blocking Our Efforts Support the Hyperemesis Gravidarum Movement

HYPEREMESIS GRAVIDARUM (HG) MUST BECOME A PRIORITY!

Thank you, Facebook and Mark Zuckerberg for blocking the Ayden Rae Foundation’s Founder and CEO, Vanessa Pack from posting in any groups. We are doing our best to save lives and gain the necessary signatures for the Hyperemesis Gravidarum (HG) Petition. 100,000 signatures are needed by March 9th, 2017, and now we are blocked until March 8th, 2017 from posting in groups. The White House petition site just finally started working properly after contacting the White House and speaking with White House Representatives as well as Tweeting and Tagging President Trump to ensure the Petition portion of WhiteHouse.org would be repaired. Once it was fixed, the time frame did not start over and only gave us less than two weeks to get the needed signatures (100,000+) to be exact. Facebook what would be amazing is Facebook supporting the HG Movement helping spread awareness about Hyperemesis Gravidarum, and promoting the Hyperemesis Gravidarum (HG) Petition helping us reach our goal of 100,000 signatures due to the current mishap. Mark Zuckerberg, you are a parent so imagine how HG families feel losing mothers and babies and feeling hopeless day after day trying to survive each pregnancy.

Furthermore, we are tired of being blocked from helping others, and here we go again, and Facebook is going to prevent us from finally ensuring that HG is made a National Priority. This is not fair Facebook, and please know that everything we do on Facebook is to save lives, support others and help small businesses thrive. By the way, Vanessa Pack is also blocked from helping the families who are suffering from HG in our support groups for over a week. These families depend on our support. Please lift the block on Vanessa Pack’s Facebook account immediately. Facebook should not just block people on Facebook because they are too social or because people report posts without checking the reported posts yourselves. There are trolls out there who feed on harming others, and sadly Facebook feeds into their drama instead of doing the proper research to ensure that those who are being blocked are blocked rightfully.

https://www.facebook.com/aydenraefoundationHGsupport/videos/817347695065295/

The Ayden Rae Foundation is dedicated to saving lives and one day helping eradicate Hyperemesis Gravidarum (HG)

To the President and Members of Congress,
We the People petition the United States Congress to make Hyperemesis Gravidarum (HG) a national priority!

Fighting Hyperemesis Gravidarum Together

Do your part! There is still time to sign and save babies and mothers who suffer from Hyperemesis Gravidarum.

We are ever closer to presenting the petition, so please sign today.

To the Congress of the United States,

Hyperemesis Gravidarum (HG) is the most severe form of nausea and vomiting during pregnancy. It can lead to dehydration, severe malnutrition and electrolyte imbalance that can be fatal for both mother and her unborn child(ren).

The cause and prevalence of HG are unknown due largely to the absence of larger-scale, controlled research. Some studies estimate as many as 10 percent of pregnant women are affected. According to the Healthcare Cost & Utilization Project (HCUP), there are nearly 300,000 visits to ERs and hospitals due to HG. HG is hardly a rare disorder. Still, fewer than 20 studies were published on HG in 2010 while studies on birth defects, which affect fewer children, number over 11,000.

After an extensive online search and months of continued research to locate statistics regarding HG, the Ayden Rae Foundation is appalled to report the outcome of the findings. Unfortunately, it has been since 2008 that any statistics have been tracked surrounding the true impact of HG. The report before that was conducted in 1996. In 1996, there were approximately 68,000 documented cases of HG in the U.S. In 2008, HCUP reported nearly 300,000 visits to the ERs and hospitals due to HG.

HG incidence rates are comparable to breast cancer rates. Yet, federal funding is not available for HG research, awareness, and education efforts. In 2008, there were close to 300,000 documented HG related emergency room visits and hospital stays; there were only 185,000 breast cancer-related visits and stays according to The American Cancer Society.

In 2011, an estimated 230,480 new cases of invasive breast cancer were expected to be diagnosed in women in the U.S., along with 57,650 new cases of non-invasive (in situ) breast cancer as estimated by the American Cancer Society. New cases for HG are unknown at this point because they are not being tracked and/or being misdiagnosed. Once the true facts and figures are properly calculated, the impact HG has on families worldwide will be astonishing.

In 2007, Breast Cancer received a significant amount of funding, 7 million, and HG received no funding or recognition from the National Institutes of Health, our nation’s medical research agency.

Scientists working to discover new treatments for medical conditions and cures should not be made to compete for limited research funding. Scientists must feel encouraged to develop HG research as well. Both breast cancer and HG research funding must continue to grow. Breast cancer and HG patients, are similar in number and should receive adequate funding and promotion.

We, the undersigned, call on the Congress of the United States to make HG research a national public health priority. Specifically, we ask the members of Congress to ensure that promotion and funding for HG research is, at all times, comparable to levels allocated for breast cancer and other diseases funded for the public health.

It is theorized that HG is genetic and may be passed from mother to child. This explains the explosive numbers of ER and hospital visits up from 68,000 in 1996 to approximately 300,000 in 2008. However, due to the lack of research, no one knows for sure. Much needed research has yet to be done on the subject of HG to confirm or deny any such findings and how many there are to date. USC and UCLA are awaiting funding for research at this time. The Ayden Rae Foundation and its supporters are doing all they can with limited funding to aid such research and support the challenges in finding a cause and cure for HG.

FACT: 1 in every 3 Hyperemesis Gravidarum pregnancies does not result in a live birth. By making Hyperemesis Gravidarum a National Priority, the United States can lead the way in identifying a cause and a cure for a disorder that claims innocent lives and destroys families.

Sign Petition here!

SOURCEAyden Rae Foundation
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Health Support and Awareness Advocate with a lifelong dream of being an educator, Vanessa was well along the path towards realizing her goal, having completed an Associate of Arts in Natural Science, Associate of Science in Social Science, Bachelor of Arts in Liberal Studies, and her Master’s of Education, Adult Educators and Administrators. Close to the culmination of the education required to reach her goal of a teaching career geared towards K-12, Vanessa had to make a difficult decision. She asked herself, “Do I continue on with my dream of being a teacher or focus on saving mothers and babies by helping to discover a cause and cure for Hyperemesis Gravidarum?” Vanessa was a volunteering for the Hyperemesis Education and Research Foundation [HER] when she realized there were limited options available when fundraising as a volunteer. The Packs decided to create their own foundation, one that would support all organizations seeking to discover a cause and cure for HG. The Packs held the first ever HG walk on October 20, 2007, A Walk to Remember: HG Walk America, raising awareness in the community and gaining much-needed support for those suffering from the disorder. Proceeds of the walk were donated to the HER Foundation. During the completion of Vanessa’s Masters in 2012, the Ayden Rae Foundation was born. After the birth and survival of the Ayden Rae Foundation, Vanessa and her family grew to understand that there was a greater need for more awareness and support for all diseases/conditions/disorders/syndromes and together they plan to spread awareness about every disease/condition/disorder/syndrome they are made aware of and help diseasemaps.org connect those who suffer from those diseases; discover that they are not alone and find the resources available for them. It is vital that we all do our part to help eradicate all disease, so families are no longer suffering. It is noteworthy to point out that the worst disease on the planet that most in the world overlook is aging and death! Remember to always be willing to learn more about things you aren't aware of and show compassion for those who are afflicted; awareness and support is key for all of us ❤