As a non-profit, we do our best to manage our time properly because time in general for most people is a treasured resource and should not to be taken for granted. The Ayden Rae Foundation utilizes Facebook as a tool to offer life-saving support to Hyperemesis Gravidarum (HG) families worldwide through our online Facebook Support Fan Page Ayden Rae Foundation Hyperemesis Gravidarum Support and Awareness and all of our private HG Support Groups and Chapter Facebook Groups that are set up as private Facebook Groups.

The Ayden Rae Foundation discovered early on that those we support want to stay on Facebook and they are not likely to visit a forum or group away from Facebook. People are creatures of habit and want to stick with what they know and are comfortable with once they have established their comfort zone.

Thus, the Ayden Rae Foundation did not fight this reality and integrated our whole support network on the Facebook platform. Shouldn’t Facebook be ecstatic that the platform they created has created a means for organizations to help their members and save lives no matter where they are in the world?

However, instead we are penalized for being too social and lose access to our accounts and ability to help others, and this is not fair. Therefore, the Ayden Rae Foundation and Justice News Network demands justice be served for those who make Facebook the success it is today; Facebook’s Members.

I am, Co-Founder & CEO of the Ayden Rae Foundation one thing we dread as a Non-profit foundation that supports families who suffer from Hyperemesis Gravidarum (HG) is not having the ability to communicate and aid our families in need. Unfortunately Facebook’s flawed reporting system allows individuals to report any post without cause and permits those who do not agree or like the individual post, person, business and/or organization to report the post/user and often there was no truth or accuracy of a claim/report in the first place.

There should be a proper validation process in place to ensure that these reports are valid and not so easy for users to lose access to their accounts and/or blocked from access to one or more features that Facebook offers. There have been times when we as a critical charity are sharing awareness posts, event posts, supporting local businesses who support our critical charity, and so on and by doing so, we have been blocked by Facebook for being too Social; is there such a thing when it comes to Social Media? That seems like an oxymoron to us, what do you think?

As the Co-Founder of the Ayden Rae Foundation and Admin of all Social Media and all Facebook Fan Pages and Groups ran by the Ayden Rae Foundation, I am appalled that I still do not have access to my Facebook account. After all that I endured all day long and it is noteworthy to point out that it is after 9 pm PST, and I will go to bed knowing that I will wake up in the morning to do the same as I did today.

Facebook Blocking Issues
P.S. Facebook, please remove my block and add a note to my account to not block me from being too social and doing all that we can to save lives of mothers and babies worldwide.

Thank you,

Perry & Vanessa Pack HGactivists (Also a name Facebook forced us to drop)

Founders and CEOs of the Ayden Rae Foundation

SOURCEPerry & Vanessa Pack HGactivists
HGactivists
http://www.AydenRaeFoundation.org
Health Support and Awareness Advocate with a lifelong dream of being an educator, Vanessa was well along the path towards realizing her goal, having completed an Associate of Arts in Natural Science, Associate of Science in Social Science, Bachelor of Arts in Liberal Studies, and her Master’s of Education, Adult Educators and Administrators. Close to the culmination of the education required to reach her goal of a teaching career geared towards K-12, Vanessa had to make a difficult decision. She asked herself, “Do I continue on with my dream of being a teacher or focus on saving mothers and babies by helping to discover a cause and cure for Hyperemesis Gravidarum?” Vanessa was a volunteering for the Hyperemesis Education and Research Foundation [HER] when she realized there were limited options available when fundraising as a volunteer. The Packs decided to create their own foundation, one that would support all organizations seeking to discover a cause and cure for HG. The Packs held the first ever HG walk on October 20, 2007, A Walk to Remember: HG Walk America, raising awareness in the community and gaining much-needed support for those suffering from the disorder. Proceeds of the walk were donated to the HER Foundation. During the completion of Vanessa’s Masters in 2012, the Ayden Rae Foundation was born. After the birth and survival of the Ayden Rae Foundation, Vanessa and her family grew to understand that there was a greater need for more awareness and support for all diseases/conditions/disorders/syndromes and together they plan to spread awareness about every disease/condition/disorder/syndrome they are made aware of and help diseasemaps.org connect those who suffer from those diseases; discover that they are not alone and find the resources available for them. It is vital that we all do our part to help eradicate all disease, so families are no longer suffering. It is noteworthy to point out that the worst disease on the planet that most in the world overlook is aging and death! Remember to always be willing to learn more about things you aren't aware of and show compassion for those who are afflicted; awareness and support is key for all of us ❤

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1 COMMENT

  1. Facebook needs to evolve away from the arrogance of false corporate omnipotence and develop an empathetic humanity to SERVE the world wide membership of over a BILLION and A HALF members to promote the prosperity and well-being of people, and NOT the interest of JUST GROWING the Facebook market cap. THAT IS THE TRUTH!

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